I would say that I am not sure why I don't update more frequently, but this week I know exactly why. This week I received my second-to-last chemo treatment. No, it was not my last one, but we are almost there. After nearly eight weeks, my blood cells had finally regrown enough for me to be able to kill them all again. It's rather contradictory: just when I am finally starting to feel healthy and full of blood, I get to go and have lethal drugs injected into my system. I say lethal because they kill cells. I am pretty sure the drugs will not actually kill me. There are, however, no guarantees of this.
Wednesday morning I hopped on a bus, and twenty minutes later, I found myself at Dana-Farber Cancer Institute with a lump of dread weighing in my stomach. I was quickly admitted and given a chair. I was then moved to a bed because I needed to have a spinal tap later on in the day. Not only was this my first time getting chemo by myself, now I was in a solitary room. Oh well; it's better than the alternative. After that, my nurse poked a needle into my right arm vein. Unfortunately, this needle wasn't returning any blood, so we had to find another vein. Luckily, I had been saving up my good veins, and there was one on my other arm. Blood was drawn, hydration was given, and then the chemo began. It began with an injection into the IV, which was short and sweet. I was then hooked up to my bag of methotrexate, which was neither short nor sweet. In fact, it went in over three hours, and it was bright yellow. Time dripped away, and I finally found myself with nothing hooked up to me. Then it was the spinal tap's turn. This was to be my seventh spinal tap, a fact I am not necessarily proud of, but it's kind of hardcore. Anyway, so this spinal tap wasn't that bad, hardly any pain. The doctor (nurse? I'm not sure) went right in, drew the fluid, and replaced it with chemo straight away. She was quite speedy. I had to lie flat on my back for thirty minutes, and then I was free to go. So I went.
I went back to my apartment. I took a cab; I had gotten cab vouchers at Dana-Farber. I got back to my apartment, and within fifteen minutes, I was throwing up. I felt kind of bad for my roommate, but not really because I'm not sure he noticed. For about forty-five minutes I tried to vomit out my stomach. And then I ate some chips and slept for an hour. And then I slept twelve more.
That was Wednesday. Today is Sunday. In the meantime, I have been battling a cold, trying to study, and running around probably a bit too much. I feel fine, aside from this beastly cold. My energy isn't quite where it was, but it is pretty darn close. I am fairly sure that this is the best I have handled any chemo since I started. I actually played flag football today. We won. I scored a touchdown. It was awesome. So this is life now, I suppose. Get my drugs, and move on. I don't have time to mope around the apartment feeling ill. I have to get back to business and soon. I am excited for this week; it should be a good week. I hope everyone else has a good week as well. Good luck with life! Oh Also: Shout out to Amy who ran the Chicago Marathon a week ago. She finished, which is more than a lot of people could say last Sunday. She ran with Team in Training, who raise funds for the Leukemia and Lymphoma Society, and I guess they raised a Ton of money. Thank you Amy!!! Good luck with your recovery. Anyway, that's all. Peace.
Sunday, October 14, 2007
Monday, October 8, 2007
Dear blog,
This weekend was a lot of fun. I went to my friend's house, and we watched a movie. The movie was really weird, but it was an old movie. The really cute boy in my class waved at me on Friday. I'm going to ask my friend to ask his friend if he has a girlfriend. Well, maybe. I stayed up past my bedtime on Sunday night to watch the Bears football game, and they won! It was super awesome. And we didn't have school today! The only bad thing is I got sick again. All my friends are sick. I guess they got me sick too.
Okay, enough of that. This weekend was probably my best one since I've been back, despite having re-caught my cold. I don't think I ever really got over the last one, and I'm still immuno-compromised, so it makes sense that it came back. I just realized, however, that I can't remember the details of my weekend, which is becoming more than a little disconcerting. Yesterday and today I mostly just relaxed, this I know. I so badly needed to just sit around and not think about anything. This past week has been so overwhelming. I can't believe it has only been one week since my birthday. It seems so long ago. I suppose part of the reason I can't remember what I did specifically on any one day is that I did so much and talked to so many new people this past week. I am starting to freak out a little bit though because of my newfound inability to remember recent events. We'll see what happens with it, especially after I get chemo this week.
An interesting tidbit I do remember, though, happened when I was working at the gym on Saturday. One of the regular dance teachers came in to get the keys to the studio, and she said to me, "Wow, your hair is really growing!" I laughed because it is hard for me to tell if it's getting any longer but she said something like she measures her progress every week by the length of my hair. It made more sense than that, but it was quite funny and very nice of her to say. So I guess my hair is getting closer to a decent length, although it's still one of the shortest female cuts on campus. I like it. Anyway, tomorrow's a long day, and Wednesday is chemo. We'll see what happens. I am rested and ready to go, but I still hope everything goes well. I need this to end, now. Alright, enjoy Tuesday and whatnot. Peace.
Okay, enough of that. This weekend was probably my best one since I've been back, despite having re-caught my cold. I don't think I ever really got over the last one, and I'm still immuno-compromised, so it makes sense that it came back. I just realized, however, that I can't remember the details of my weekend, which is becoming more than a little disconcerting. Yesterday and today I mostly just relaxed, this I know. I so badly needed to just sit around and not think about anything. This past week has been so overwhelming. I can't believe it has only been one week since my birthday. It seems so long ago. I suppose part of the reason I can't remember what I did specifically on any one day is that I did so much and talked to so many new people this past week. I am starting to freak out a little bit though because of my newfound inability to remember recent events. We'll see what happens with it, especially after I get chemo this week.
An interesting tidbit I do remember, though, happened when I was working at the gym on Saturday. One of the regular dance teachers came in to get the keys to the studio, and she said to me, "Wow, your hair is really growing!" I laughed because it is hard for me to tell if it's getting any longer but she said something like she measures her progress every week by the length of my hair. It made more sense than that, but it was quite funny and very nice of her to say. So I guess my hair is getting closer to a decent length, although it's still one of the shortest female cuts on campus. I like it. Anyway, tomorrow's a long day, and Wednesday is chemo. We'll see what happens. I am rested and ready to go, but I still hope everything goes well. I need this to end, now. Alright, enjoy Tuesday and whatnot. Peace.
Thursday, October 4, 2007
Back in the library.
Waiting for something to print. I apologize for not updating more frequently. It's amazing how much more difficult it is to write daily when you actually have things to do. Life certainly is different now that I am not my sitting on a hospital bed with absolutely nothing to do.
An update is in order. A major update. The past two days have been... crazy. I don't know how else to put it. It all started when BU Today ran the profile of me the day before my birthday. I started getting e-mails and messages from completely random people wishing me happy birthday and also telling me how much they liked the interview. There were lots of, "I really admire your courage," quotes, which to me is amazing. I was thinking about this, and I came to the conclusion that anyone else in this situation would have done the same thing. I've just been more vocal with my experiences. Either way. I probably received over 100 e-mails on Monday and Tuesday, both well-wishes and birthday wishes. Two e-mails are worth noting:
The first was from a woman who was forwarded my story from a BU student. She told me she is writing a book about college-age cancer survivors. Specifically, she has interviewed and been in contact with about forty survivors. She has taken their firsthand accounts of their cancer experiences and put them together for a book. Anyway, so she e-mailed me and asked if I would like to be one of the survivors in the book, which is so far nameless. I of course said Yes. We've talked on the phone, and it sounds like such a fantastic idea. The book is not just of the survivors' stories, but it also contains letters and pictures and such. I am so flattered to be a part of this and so excited that she is writing it. There are no other books out there that highlight specifically young-adult survivors, that tell their stories in their own words. I mean, really, it would have been a huge help ten months ago to know about others who were going through the same thing. So I am excited, and it is going to be great.
Part Two: I was contacted by the dean of the medical school here at BU, and, long story short, I will be speaking to pretty much all of the first-year medical students at the end of October. I guess I'm pretty good at expressing myself, and people think that's cool? Anyway, I will be talking about what it was like when I was first diagnosed, how the doctors treated me, my reaction, etc. And did I mention it will be in front of masses of first-year med students? Yes, I think I did. Pretty sweet. I guess if I ever had any lingering fear of public speaking, I had better eliminate it quickly.
So here's the thing about all this attention I am receiving: It's not that I don't necessarily want it, but I don't want it just for the sake of getting attention. I want to be able to make a difference, whether by helping increase empathy for future doctors, or by helping another twenty year-old girl just diagnosed with cancer get through the hard parts. I don't want my fifteen minutes of cancer-fame; I want to try and do something lasting. I am not sure yet how to translate all this into a "cause" though. Maybe start something at BU for survivors; I have heard from a couple, which is amazing. Maybe start a Gilda's Club or a Boston young-adult group, or something. I'm not sure. I do know, however, that now it is up to me to take this ball and run with it. Anyway. So that's been my week. Like I said, it has been crazy. I hope your week was as awesome, and I hope the weekend goes well as well. Oh yeah, still no chemo. Next Wednesday, for sure. Alright, that's all (haha, even though there's always more.) Pax.
An update is in order. A major update. The past two days have been... crazy. I don't know how else to put it. It all started when BU Today ran the profile of me the day before my birthday. I started getting e-mails and messages from completely random people wishing me happy birthday and also telling me how much they liked the interview. There were lots of, "I really admire your courage," quotes, which to me is amazing. I was thinking about this, and I came to the conclusion that anyone else in this situation would have done the same thing. I've just been more vocal with my experiences. Either way. I probably received over 100 e-mails on Monday and Tuesday, both well-wishes and birthday wishes. Two e-mails are worth noting:
The first was from a woman who was forwarded my story from a BU student. She told me she is writing a book about college-age cancer survivors. Specifically, she has interviewed and been in contact with about forty survivors. She has taken their firsthand accounts of their cancer experiences and put them together for a book. Anyway, so she e-mailed me and asked if I would like to be one of the survivors in the book, which is so far nameless. I of course said Yes. We've talked on the phone, and it sounds like such a fantastic idea. The book is not just of the survivors' stories, but it also contains letters and pictures and such. I am so flattered to be a part of this and so excited that she is writing it. There are no other books out there that highlight specifically young-adult survivors, that tell their stories in their own words. I mean, really, it would have been a huge help ten months ago to know about others who were going through the same thing. So I am excited, and it is going to be great.
Part Two: I was contacted by the dean of the medical school here at BU, and, long story short, I will be speaking to pretty much all of the first-year medical students at the end of October. I guess I'm pretty good at expressing myself, and people think that's cool? Anyway, I will be talking about what it was like when I was first diagnosed, how the doctors treated me, my reaction, etc. And did I mention it will be in front of masses of first-year med students? Yes, I think I did. Pretty sweet. I guess if I ever had any lingering fear of public speaking, I had better eliminate it quickly.
So here's the thing about all this attention I am receiving: It's not that I don't necessarily want it, but I don't want it just for the sake of getting attention. I want to be able to make a difference, whether by helping increase empathy for future doctors, or by helping another twenty year-old girl just diagnosed with cancer get through the hard parts. I don't want my fifteen minutes of cancer-fame; I want to try and do something lasting. I am not sure yet how to translate all this into a "cause" though. Maybe start something at BU for survivors; I have heard from a couple, which is amazing. Maybe start a Gilda's Club or a Boston young-adult group, or something. I'm not sure. I do know, however, that now it is up to me to take this ball and run with it. Anyway. So that's been my week. Like I said, it has been crazy. I hope your week was as awesome, and I hope the weekend goes well as well. Oh yeah, still no chemo. Next Wednesday, for sure. Alright, that's all (haha, even though there's always more.) Pax.
Monday, October 1, 2007
Guess What.....
In ONE HOUR AND FORTY MINUTES I will be 21. I will be 21 in Boston! I think it's safe to say that I still don't fully believe it. I feel great. I've been walking all over the place, and my cold is mostly gone. Also, there was a super cool profile of me on BU Today today. There are pictures and sounds and words and everything. So if you've ever wondered what I sound like, or if you would like to hear my voice regurgitating, in shortened form, much of what I have said on the b-log, check THIS out! I am impressed; it is pretty cool. I am interested to see if more people recognize me on campus now. I'm sort of hard to miss, what with this whole Rocking haircut, but we'll see.
My day begins tomorrow at 5 am, when I wake up for my 6-10 shift at the Proshop. I am excited. It's going to be a good day. I hope your day is as good as mine. Happy thoughts all around. Peace. :)
My day begins tomorrow at 5 am, when I wake up for my 6-10 shift at the Proshop. I am excited. It's going to be a good day. I hope your day is as good as mine. Happy thoughts all around. Peace. :)
Sunday, September 30, 2007
Sunday is a day of eating.
I usually have something like three breakfasts on Sunday and snack the rest of the day. I think it is because on the days I don't do much, I eat. (Worth noting is that my idea of a breakfast is a bagel or bowl of cereal.)
Another week has ended, another begun. Today is the last day of September, and tomorrow is the first day of October, which means that I have been in Boston for one month now. I still haven't started my chemo, but I am hoping I will this coming week. It has certainly been a crazy past four weeks. It seems that whenever my lifestyle changes, it does so drastically and with no forewarning. December 2006, I went, in one week, from being a sleep-deprived college student to an overwhelmed hospital patient with tubes sticking out of me. One month ago, in three days, I went from pretty much not doing anything at all, aside from going to clinics, to having to take a deep breath and dive back into the crazy, active world of college. There was no transition period, although I don't know how there could have been. Now, after a month, I feel like I'm finally getting settled. I made a few bad decisions the past four weeks (house parties are a bad idea for those of us who aren't used to 200 people stuffed together, oozing beer). I am still not fully confident in my role as a college student, but I am in a much better place than I was when I first got here. I also have lots of blood, which is, you know, awesome. Oh, and my hair is growing back like crazy. So life is pretty good, especially now that I've stopped worrying so much about what I should be doing. I should be doing my homework, but aside from that, I am mostly just relaxed.
I can't believe it's almost October. Two days and I will be 21. I will be spending the day with my friends, and who believed, even a few months ago, that that would happen? Well, I always knew I'd be back, but it's nice to be right. So, have a good week everyone, because I sure will. And even if I start chemo on Thursday, it will still be a good week because then I will be one week closer to being finished with treatment. Limbo isn't so much fun. Alright, Peace.
Another week has ended, another begun. Today is the last day of September, and tomorrow is the first day of October, which means that I have been in Boston for one month now. I still haven't started my chemo, but I am hoping I will this coming week. It has certainly been a crazy past four weeks. It seems that whenever my lifestyle changes, it does so drastically and with no forewarning. December 2006, I went, in one week, from being a sleep-deprived college student to an overwhelmed hospital patient with tubes sticking out of me. One month ago, in three days, I went from pretty much not doing anything at all, aside from going to clinics, to having to take a deep breath and dive back into the crazy, active world of college. There was no transition period, although I don't know how there could have been. Now, after a month, I feel like I'm finally getting settled. I made a few bad decisions the past four weeks (house parties are a bad idea for those of us who aren't used to 200 people stuffed together, oozing beer). I am still not fully confident in my role as a college student, but I am in a much better place than I was when I first got here. I also have lots of blood, which is, you know, awesome. Oh, and my hair is growing back like crazy. So life is pretty good, especially now that I've stopped worrying so much about what I should be doing. I should be doing my homework, but aside from that, I am mostly just relaxed.
I can't believe it's almost October. Two days and I will be 21. I will be spending the day with my friends, and who believed, even a few months ago, that that would happen? Well, I always knew I'd be back, but it's nice to be right. So, have a good week everyone, because I sure will. And even if I start chemo on Thursday, it will still be a good week because then I will be one week closer to being finished with treatment. Limbo isn't so much fun. Alright, Peace.
Tuesday, September 25, 2007
What good is a b-log if you can't use it to procrastinate?
I don't have all that much school-work to do, but I most definitely have about three loads worth of laundry. Oh well, it will get done eventually, even if I have to do it myself. Which I do.
It occurred to me that in my last few blog posts I may have sounded either somewhat elitist or judgmental of pretty much anyone who isn't me. I would like to clarify that In No Way do I feel higher or more special than anyone else. I wish so badly that this hadn't happened to me and that I was just another college-age girl ready and able to drink and dance and party and stay up past 11:00 at night without starting to fall asleep. The thing is, I am not. According to Aristotle, one wishes for an end that is often impossible to achieve. So instead of wishing for the end, one needs to deliberate and make decisions that will provide the means to the end (see, I'm kind of studying...). Basically, wishing is no good because there is no action or effort towards achieving the end. You need to go out and do things to make yourself happy, which to Aristotle is the ultimate end, the highest good, which we all innately seek. So while I can wish all I want that I could do normal activities like stay up late and work out in the gym, the reality is that I can't, at least not now. And more power to everyone who can do those things. The thing for me now is to figure out with what means I can work to achieve my own sort of happiness. The first step is to stop sitting here thinking about what do I do now. I just do whatever I have to to get through each day.
And speaking of getting through each day, I am so out of shape, it is funny. I played flag-football last night (we almost won. sigh.), and it was a ton of fun. But I woke up this morning and was like, wow, sore legs, where did you come from? Sore abs? You too? I think sports like that will be the best way for me to get back into some sort of running shape. It's stop and go, so I can run a little bit and then stop and catch my breath. And football is awesome. Another reminder that I was inactive for almost nine months is that my neck and back are sore from hauling my bag everywhere. The good news is that even since I got here September 1st, I am already so much more active and strong. I lost probably about 30 pounds worth of strength in my legs and maybe 15 in my upper body. But it is coming back, which is freaking awesome. Aside from this whole "no blood" thing, I feel great and healthy and am looking forward to a good last week of being 20. (my birthday's next tuesday. coughcough.) Alright, Happy Tuesday, sad toad. Keep on trucking. Peace.
It occurred to me that in my last few blog posts I may have sounded either somewhat elitist or judgmental of pretty much anyone who isn't me. I would like to clarify that In No Way do I feel higher or more special than anyone else. I wish so badly that this hadn't happened to me and that I was just another college-age girl ready and able to drink and dance and party and stay up past 11:00 at night without starting to fall asleep. The thing is, I am not. According to Aristotle, one wishes for an end that is often impossible to achieve. So instead of wishing for the end, one needs to deliberate and make decisions that will provide the means to the end (see, I'm kind of studying...). Basically, wishing is no good because there is no action or effort towards achieving the end. You need to go out and do things to make yourself happy, which to Aristotle is the ultimate end, the highest good, which we all innately seek. So while I can wish all I want that I could do normal activities like stay up late and work out in the gym, the reality is that I can't, at least not now. And more power to everyone who can do those things. The thing for me now is to figure out with what means I can work to achieve my own sort of happiness. The first step is to stop sitting here thinking about what do I do now. I just do whatever I have to to get through each day.
And speaking of getting through each day, I am so out of shape, it is funny. I played flag-football last night (we almost won. sigh.), and it was a ton of fun. But I woke up this morning and was like, wow, sore legs, where did you come from? Sore abs? You too? I think sports like that will be the best way for me to get back into some sort of running shape. It's stop and go, so I can run a little bit and then stop and catch my breath. And football is awesome. Another reminder that I was inactive for almost nine months is that my neck and back are sore from hauling my bag everywhere. The good news is that even since I got here September 1st, I am already so much more active and strong. I lost probably about 30 pounds worth of strength in my legs and maybe 15 in my upper body. But it is coming back, which is freaking awesome. Aside from this whole "no blood" thing, I feel great and healthy and am looking forward to a good last week of being 20. (my birthday's next tuesday. coughcough.) Alright, Happy Tuesday, sad toad. Keep on trucking. Peace.
Sunday, September 23, 2007
Hello new week.
My apartment-mate and I finally have internet. We have actually had it for a few days now, but I haven't had too much to say in terms of anything that would be interesting to anyone else. Wednesday I went to Dana-Farber once more, and, once more, my blood counts were too low to begin the chemo. My platelets had actually fallen even more, but my white cells had begun to increase. My doctor estimated it would be roughly two weeks before we could continue, but I am going back this Wednesday to have labs drawn.
It occurs to me once again that this b-log serves a number of good purposes, not the least of which is that it helps me remember what happened so many months ago. I honestly can't remember any specifics just off the top of my head. Everything is sort of a blur of hospital-house-clinic imagery. One thing I re-learned just now is that I have unofficially been in complete remission for almost nine months. Apparently I had a biopsy/aspirate done a few weeks into treatment, way back in December, and everything was gone. This in and of itself was and is awesome; it meant I responded quickly and well to the initial induction chemotherapy. I can't help but wonder, however, if it wouldn't be possible to just stop treatment now. I mean, I only have two more separate days of chemotherapy left... Will they really make that big of a difference, considering I have been in and stayed in remission since December? I know the answer to my question is, "Of course you need to finish it." I am on a set protocol; I am a member of an extensive study. They wouldn't just let me stop. Nonetheless, I will continue to wish.
As for an update on my adapting to society, it isn't going tremendously well. I received an e-mail from a family friend who was able to verbalize what I couldn't: "you've just got more quickly -in the space of a few short months- to a point that most people only reach well after they graduate." I realized that I really do not know what to do right now because it all happened so quickly. Like I said, the past nine months were a blur, but now I am back and nothing is the same. So what happened to me, and how do I apply what I went through to everyday situations? Also, my emotions are all over the place, particularly because I am still dealing with treatment and the day-to-day uncertainty of my health. The good news is I think I am going to try and start seeing a counselor at Dana-Farber, someone who is trained and experienced in working with cancer survivors. I was at the grocery store today, and one of the headlines on the trashy magazines was, "Jessica sees a therapist!" or something similar. Jessica being Jessica Simpson. To me, that is not gossip. So many people see therapists now that it really isn't gasp-worthy anymore. Good for her for seeing a therapist. And we'll see how it goes for me. Also, I am going to get a massage because Dana offers alternative therapies in addition to the usual chemical ones. I am all over that. I hope this is a good week; I hope good things happen for everyone. That's all from me. Pax.
It occurs to me once again that this b-log serves a number of good purposes, not the least of which is that it helps me remember what happened so many months ago. I honestly can't remember any specifics just off the top of my head. Everything is sort of a blur of hospital-house-clinic imagery. One thing I re-learned just now is that I have unofficially been in complete remission for almost nine months. Apparently I had a biopsy/aspirate done a few weeks into treatment, way back in December, and everything was gone. This in and of itself was and is awesome; it meant I responded quickly and well to the initial induction chemotherapy. I can't help but wonder, however, if it wouldn't be possible to just stop treatment now. I mean, I only have two more separate days of chemotherapy left... Will they really make that big of a difference, considering I have been in and stayed in remission since December? I know the answer to my question is, "Of course you need to finish it." I am on a set protocol; I am a member of an extensive study. They wouldn't just let me stop. Nonetheless, I will continue to wish.
As for an update on my adapting to society, it isn't going tremendously well. I received an e-mail from a family friend who was able to verbalize what I couldn't: "you've just got more quickly -in the space of a few short months- to a point that most people only reach well after they graduate." I realized that I really do not know what to do right now because it all happened so quickly. Like I said, the past nine months were a blur, but now I am back and nothing is the same. So what happened to me, and how do I apply what I went through to everyday situations? Also, my emotions are all over the place, particularly because I am still dealing with treatment and the day-to-day uncertainty of my health. The good news is I think I am going to try and start seeing a counselor at Dana-Farber, someone who is trained and experienced in working with cancer survivors. I was at the grocery store today, and one of the headlines on the trashy magazines was, "Jessica sees a therapist!" or something similar. Jessica being Jessica Simpson. To me, that is not gossip. So many people see therapists now that it really isn't gasp-worthy anymore. Good for her for seeing a therapist. And we'll see how it goes for me. Also, I am going to get a massage because Dana offers alternative therapies in addition to the usual chemical ones. I am all over that. I hope this is a good week; I hope good things happen for everyone. That's all from me. Pax.
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